Publications

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A
A guide for community organisations running health workshops with consumers
Publication Date: May, 2003, Pages: 48 , Author/Source: Consumers' Health Forum
The aim of this guide is to provide advice to national community organisations to use when conducting workshops with local community organisations on health topics or issues.
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A model of payment to consumers, carers and community representatives
Publication Date: September 2001, Pages: 3 , Author/Source: Christine Walker and Margaret Wohlers
This article presents information gathered from a sample of organisations about the type and amount of payment made to consumer, carers and community representatives.
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Alfred Psychiatry Consumer Participation Program: Staff-Consumer Collaboration in Treatment: Final Report
Publication Date: 2001, Pages: 62 , Author/Source: Kroschel, Jon, Alfred Psychiatry Consumer Participation Group
This report documents a consumer participation project undertaken in partnership between the Alfred Psychiatry and members of the Alfred Psychiatry Consumer Group. The project was funded through the Consumer and Provider Partnerships in Health (CAPPs) Project by the Commonwealth Department of Health and Aged Care.

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Alfred Psychiatry Consumer Participation: Book of procedure
Publication Date: June 2001, Pages: 34 , Author/Source: Kroschel, Jon, Alfred Psychiatry Consumer Participation Group
This project is a partnership between the Alfred Psychiatry Consumer Participation Programs' Consumer Group and Alfred Psychiatry. The project was funded by the Department of Aged Care as part of a Consumer and Provider Partnerships in Health Project (CAPPs) which was designed to further develop the evidence base underpinning effective consumer participation.
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Alice Springs Hospital: Consumer Feedback Questionnaire and Guide for Interviewers
Publication Date: 2001, Pages: 8 , Author/Source: Scott, Tina
Consists of a Consumer Feedback Questionnaire and Guide for Interviewers for the Alice Springs Hospital. The project was funded by the Department of Aged Care as part of a Consumer and Provider Partnerships in Health Project (CAPPs) which was designed to further develop the evidence base underpinning effective consumer participation.

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Alice Springs Hospital: Implementing consumer feedback into a continuous quality improvement framework
Publication Date: 2001, Pages: 38 , Author/Source: Scott, Tina
A report on the development of several tools including a questionnaire developed in consultation with Aboriginal consumers and health workers. The project was funded by the Department of Aged Care as part of a Consumer and Provider Partnerships in Health Project (CAPPs) which was designed to further develop the evidence base underpinning effective consumer participation.
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An evaluation of consumer participation in staff selection: strategy at Northern Area Mental Health Service
Publication Date: November, 2003, Pages: 51 , Author/Source: Lyndall Grimshaw (Project Evaluator)
Reports outcomes of an evaluation of The Consumer Participation in Staff Selection strategy of the Northern Area Mental Health Service.
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An evaluation of the National Resource Centre for Consumer Participation in Health
Publication Date: 2002, Pages: 35 , Author/Source: Centre for Development and Innovation in Health
Presents the findings and conclusions of the final impact evaluation of the NRCCPH. It is the last stage of a three year evaluation. The evaluation methodology included document analysis of a range of reports, surveys of users and working group members of the Centre, key informant interviews and reflective discussions with staff.
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Australian patient safety survey : final report to the Commonwealth Department of Health and Aged Care
Publication Date: 2001, Pages: 144 , Author/Source: Clark, Richard B.
The report examines various characteristics of respondents which may be predictive of self-reported experience of medical adverse events. The resource guides, reports and issues papers that make up the Consumer Focus Collaboration series have been designed to provide health care consumers, service providers and managers with ideas and information about how to work together in partnerships.
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B
Building community partnerships
Publication Date: 2003, Pages: 23 , Author/Source: Department of Human Services, Victoria
Half-day workshop for consumers, carers and community members, staff, managers and board members from primary care services in Victoria.
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Building consumers in: a resource manual in consumer participation for the not-for-profit sector
Publication Date: 2001, Pages: 37 , Author/Source: Johnson, Sue and McAdam, Helen
This manual is designed to be a resource book to assist the not-for-profit sector to develop policies and practices that facilitate consumer participation in the organisation.
The project was funded by the Department of Aged Care as part of a Consumer and Provider Partnerships in Health Project (CAPPs) which was designed to further develop the evidence base underpinning effective consumer participation.

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Building consumers in: Project report
Publication Date: 2001, Pages: 17 , Author/Source: Arthritis Victoria
Documents the goals, key learnings and anticipated outcomes of the Arthritis Victoria Consumer and Provider Partnerships Project.
The project was funded by the Department of Aged Care as part of a Consumer and Provider Partnerships in Health Project (CAPPs) which was designed to further develop the evidence base underpinning effective consumer participation.

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C
Clinical governance issues paper
Publication Date: 2001, Pages: 84 , Author/Source: Department of Health Government of Western Australia
The development of clinical governance in Western Australia represents a concerted effort to redesign the health care system with the aim of improving health care. This report promotes clinical accountability as being an essential part of daily practices of health care workers whether at the coalface or in management positions.
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Communicating with consumer Series Volume 1: well-written health information: a guide
Publication Date: July, 2000, Pages: 28 , Author/Source: Kay Currie, Janet Spink and Meera Rajendran
A publication prepared for the Department of Human Services, Acute Health Division, by the Centre for Clinical Effectiveness and Health Issues Centre. The first in a series of reports from the Assessing the Quality of Consumer Information Project.
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Communicating with consumers Series Volume 2: producing well-written health information: stroke, chest pain & cholecystectomy
Publication Date: 2001, Pages: 171 , Author/Source: Centre for Clinical Effectiveness and Health Issues Centre
A publication prepared for the Department of Human Services, Acute Health Division. This volume is the third in a series of reports from Assessing Quality of Consumer Information Project. The project was based on the King's Fund study Informing patients: an assessment of the quality of patient information materials, UK, 1998. This volume is best read in conjunction with Volume 1 which provides a guide to developing consumer information.
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Communicating with consumers Series Volume 3: producing well-written health information: menorrhagia, mastitis & pain relief during childbirth
Publication Date: 2001, Pages: 201 , Author/Source: Centre for Clinical Effectiveness and Health Issues Centre
A publication prepared for the Department of Human Services, Acute Health Division. This volume is the third in a series of reports from Assessing Quality of Consumer Information Project.The project was based on the King's Fund study Informing patients: an assessment of the quality of patient information materials, UK, 1998. This volume is best read in conjunction with Volume 1 which provides a guide to developing consumer information.
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Communicating with consumers: Good practice guide to providing information
Publication Date: 2000, Pages: 182 , Author/Source: Kate Silburn
The Guide was developed from a synthesis of the information and recommendations collected from hospitals and consumers.
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Community Advisory Committee Guidelines: non-statutory guidelines for Metropolitan Health Services
Publication Date: 2000, Pages: 18 , Author/Source: Department of Human Services
Community Advisory Committees are a statutory requirement for all Metropolitan Health Services. It is expected that Community Advisory Committees will assist health services to ensure mechanisms are in place to facilitate appropriate community and consumer participation at all levels in the health service.
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Community consultation and participation resource kit for area health service managers and project leaders
Publication Date: June, 1999, Pages: 112 , Author/Source: NSW Health
A resource kit designed to assist Area Health Service Managers and project leaders in establishing and maintaining community and consumer input into planning, policy development and service monitoring.
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Consumer and community participation in health and medical research (Statement on)
Publication Date: 2002, Pages: 45 , Author/Source: National Health and Medical Research Council & The Consumers Health Forum of Australia
The Statement on Participation is intended as a guide to consumers and community participation at all levels and across all types of health and medical research. It includes a checklist as a starting point to facilitating involvement. The summary statement (with the same title) is also available from this website.
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Consumer and community participation self-assessment tool for hospitals
Publication Date: May, 2004, Pages: 17 , Author/Source: National Resource entre for Consumer Participation in Health
Based on the original self-assessment (audit) tool for hospitals this tool was revised in 2003 through an evaluation conducted with five metropolitan health services. The tool is designed to help hospitals and units within hospitals to assess commitment to and capacity for consumer (patient), carer and community participation.
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Consumer and provider partnerships: what makes them work
Publication Date: 2004, Pages: 118 , Author/Source: Kate Moore
The Consumer and Provider Partnerships in Health Project (CAPPS) was initiated by the Australian Government Department of Health and Ageing and the Consumer Focus Collaboration (CFC). The purpose was to demonstrate and promote good practice and to develop the evidence base underpinning effective consumer participation.
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Consumer Focus Collaboration publications (CD-ROM)
Publication Date: 2000, Pages: 1 CD ,
A CD ROM is available free which contains most of the suite of Consumer Focus Collaboration publications. The resource guides, reports and issues papers that make up the Consumer Focus Collaboration series have been designed to provide health care consumers, service providers and managers with ideas and information about how to work together in partnerships.
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Consumer participation in accreditation : project report
Publication Date: 2001, Pages: 144 , Author/Source: Enduring Solutions
The four pilot studies undertaken during this project provided an opportunity to demonstrate how consumers could be engaged effectively in accreditation processes either at the health facility level or as reviewers and surveyors in an accreditation team. The resource guides, reports and issues papers that make up the Consumer Focus Collaboration (CFC) publication series have been designed to provide health care consumers, service providers and managers with ideas and information about how to work together in partnerships.
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Consumer participation in accreditation : resource guide
Publication Date: 2001, Pages: 96 , Author/Source: Enduring Solutions
A guide to accreditation processes designed for workers in health services. The resource guides, reports and issues papers that make up the Consumer Focus Collaboration publication (CFC)series have been designed to provide health care consumers, service providers and managers with ideas and information about how to work together in partnerships.
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Consumer participation in Australian Divisions of General Practice: a case study
Publication Date: 2002, Pages: 59 , Author/Source: National Resource Centre for Consumer Participation in Health
This case study report is one component of the National Resource Centre for Consumer Participation in Health's Primary Health Care Project. It aims to describe the consumer and community participation strategies in three Australian Divisions of General Practice.
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Consumer participation in Australian primary care: a literature review
Publication Date: 2002, Pages: 69 , Author/Source: National Resource Centre for Consumer Participation in Health
Examines the literature on existing models of consumer and community participation in primary care in Australia.
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Consumer Participation in Health: Search Conference Proceedings
Publication Date: 2002, Pages: 55 , Author/Source: Priorities and Quality Branch, Commonwealth Department of Health and Ageing
The Consumer Focus Collaboration operated until June 30, 2001. Outgoing CFC members felt the need for a mechanism for capturing the benefits of the CFC strategy and linking them to possible future directions for consumer strategies in health. A search conference was proposed.The search conference was build around 4 objectives - To map current and planned activities; To identify innovations within the field; To highlight gaps for activities in consumer participation; and To anticipate emerging issues.
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Consumer participation in quality improvement & health service accreditation: a case study
Publication Date: 2001, Pages: 26 , Author/Source: Evans, Frank and others
A project funded by the Department of Health and Aged Care to document the experience of the Upper Murray Health and Community Services when engaging with the community.
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Consumer participation in safety and quality at Flinders Medical Centre - The search for a consumer-focused model
Publication Date: 2002, Pages: 51 , Author/Source: Dr Anne Johnson and Danielle Bament
The aim of this project was to investigate if and how consumers, representatives of consumer and community groups and members of the broader community would prefer to be involved in Flinders Medical Centre; to explore some of the issues for consumers and representatives of consumer and community groups which may inhibit or enhance their participation; and to develop a consumer participation model for Flinders Medical Centre that is based on the findings of the study.
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Consumer participation in sharing health care initiative project: a case study report
Publication Date: September, 2003, Pages: 70 , Author/Source: National Resource Centre for Consumer Participation in Health
The Sharing Health Care Initiative is part of the Commonwealth Department of Health and Ageing's Enhanced Primary Care Package of 1999-2000. One of the major components is a series of eight mainstream and four indigenous demonstration projects.
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Consumer participation: tools and strategies for developing a positive culture for meaningful consumer participation: proceedings from a forum held on 9 April 2003
Publication Date: October 2003, Pages: 43 , Author/Source: ACTCOSS
The forum was the result of four organisations joining forces which ensured that the planning of the forum involved the perspectives of both consumers and service providers. More than 70 participants took part in the day. This document is a collection of papers coming out of the forum.
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Creating a dialogue in community health at North Yarra Community Health
Publication Date: 2001, Pages: 74 , Author/Source: Larwill, Kirsten
Reports a project undertaken to increase active community involvement in planning and delivering services provided by North Yarra Community Health.The project was funded by the Department of Aged Care as part of a Consumer and Provider Partnerships in Health Project (CAPPs) which was designed to further develop the evidence base underpinning effective consumer participation.
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D
Development and implementation of a statewide action plan for consumer involvement with Divisions of General Practice (CAPPs Project Report)
Publication Date: 2001, Pages: 13 , Author/Source: McQuillan, Gloria
The aim of the project was to facilitate a statewide workshop on consumer participation in the Western Australian Divisions of General Practice, with the outcome being the development of a consumer participation action plan.
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E
East Gippsland and Wellington Primary Care Partnerships: guide to consumer and carer participation
Publication Date: 2003, Pages: 29 , Author/Source: East Gippsland and Wellington Primary Care Partnerships
This guide was developed to assist primary health and community service agencies to enhance the quality and effectiveness of their engagement with consumers and carers. Also available in CDROM format.
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Education and training for consumer participation in health care: final report of project
Publication Date: June, 2001, Pages: 89 , Author/Source: Global Learning Services
The report looks at how training, education and learning for consumers, health professionals and administrators to enhance participation in health care policy, planning, service delivery and evaluation can be made more effective. The resource guides, reports and issues papers that make up the Consumer Focus Collaboration (CFC)publication series have been designed to provide health care consumers, service providers and managers with ideas and information about how to work together in partnerships.
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Education and training for consumer participation in health care: resource guide
Publication Date: March, 2000, Pages: 156 , Author/Source: Global Learning Services
A guide designed to assist both consumers and providers who are interested in undertaking some education and training processes that will facilitate consumer participation in the health care system. The resource guides, reports and issues papers that make up the publication series have been designed to provide health care consumers, service providers and managers with ideas and information about how to work together in partnerships.
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Education and training partnerships in mental health: learning together
Publication Date: 1999, Pages: 143 , Author/Source: Deakin Human Services Australia
Report of a project commissioned to advise on future directions for education and training. The method of the project was consultative, involving fifty or so people committed to improving mental health services through education and training. The central focus became the need for change within and between five major disciplines. The key driver was the needs and rights of consumers and carers, as they defined them around their 'lived experience'.
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Enhancement of consumer and provider collaboration in the Metropolitan Health Service in Western Australia
Publication Date: 2001, Pages: 98 , Author/Source: Brittain, Jenny
Methods of involving consumers can be as simple as acknowledging that patients have a right to ask questions about their care and be given a response, to more formal means such as including consumer representatives on committees, patient focus meetings, a complaints/feedback process and patient satisfaction surveys. Health services/public hospitals within the Perth metropolitan area also have Community Advisory Councils, which are the focus of this project. The project was funded by the Department of Aged Care as part of a Consumer and Provider Partnerships in Health Project (CAPPs) which was designed to further develop the evidence base underpinning effective consumer participation.
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Enhancing consumer participation within psychiatric nursing academia
Publication Date: 2001`, Pages: 50 , Author/Source: Happell, Brenda and Roper, Cath
The aim of this consumer/provider partnership was to promote consumer participation in the education of mental health professionals through the creation of a 'consumer academic' staff position at the Centre for Psychiatric Nursing Research and Practice. This report outlines the processes through which this position was implemented, details activities undertaken by the consumer academic, and examines key learnings of the project. The project was funded by the Department of Aged Care as part of a Consumer and Provider Partnerships in Health Project (CAPPs) which was designed to further develop the evidence base underpinning effective consumer participation.
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Evidence supporting consumer participation in health
Publication Date: 2001, Pages: 10 , Author/Source: Consumer Focus Collaboration
Provides an overview of some of the evidence that supports the link between consumer participation activities and improvement in the quality and safety of health care.The resource guides, reports and issues papers that make up the Consumer Focus Collaboration publication series have been designed to provide health care consumers, service providers and managers with ideas and information about how to work together in partnerships.

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F
Fact sheet
Author/Source: National Resource Centre for Consumer Participation in Health
Fact sheets are now called Information Series. To retrieve the set of sheets please enter the term 'series' in the search field.
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FAQ: Frequently asked questions about consumer participation in health (Illawarra Area Health Service and Illawarra Consumer Health Council)
Publication Date: 2001, Pages: 127 , Author/Source: Legge, Karen
A question and answer approach is taken in presenting the information from the Illawarra Consumer and Provider Partnerships Project. The project was funded by the Department of Aged Care as part of a Consumer and Provider Partnerships in Health Project (CAPPs) which was designed to further develop the evidence base underpinning effective consumer participation.
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Feedback, participation and consumer diversity: a literature review
Publication Date: 2000, Pages: 88 , Author/Source: National Resource Centre for Consumer Participation in Health
Part of the series of Consumer Focus Collaboration publications designed to support consumers and health care providers.
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Feedback, participation and consumer diversity: an annotated bibliography
Publication Date: 2000, Pages: 93 , Author/Source: National Resource Centre for Consumer Participation in Health
The resource guides, reports and issues papers that make up the Consumer Focus Collaboration (CFC)series have been designed to provide health care consumers, service providers and managers with ideas and information about how to work together in partnerships.
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Final report: Developing consumer driven performance reports for acute cardiac services
Publication Date: June, 2002, Pages: 29 , Author/Source: Epworth Hospital
The project involved two consumer partner organisations - Heartbeat Epworth Inc, and Cardiomyopathy Association of Australia Ltd. The project aimed to develop a report using the Purposeful Reporting to Consumers' framework.
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Final report: Gynaecological procedures in day surgery: working with consumers to develop a targeted communication strategy for women with endometriosis
Publication Date: June, 2002, Pages: 73 , Author/Source: Epworth Hospital
In May 2001 the Department of Health and Ageing targeted the private health care sector with funding for two Consumer and Provider Partnerships in Health Projects (CAPPs). This is the final report for the Epworth project.
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First steps forward: South Australian health reform
Publication Date: September 2003, Pages: 20 , Author/Source: Government of South Australia
This paper is designed to inform the implementation process for the move to new governance arrangements in the South Australian health system.
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G
Getting it right: involving consumers in policy development for diabetes: final report
Publication Date: 2001, Pages: 102 , Author/Source: Getting It Right Project
The project aimed to develop a network of consumers with diabetes who had an interest in shaping the services they use, and who could lobby for changes in service provision and support for people living with diabetes.The project was funded by the Department of Aged Care as part of a Consumer and Provider Partnerships in Health Project (CAPPs) which was designed to further develop the evidence base underpinning effective consumer participation.
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Guidelines for consumer representatives
Publication Date: 1999, Pages: 32 , Author/Source: Consumers' Health Forum
This publication is designed to give consumers useful information to empower them in their representation role.
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Guidelines for selecting consumer and community representatives
Publication Date: January, 2003, Pages: 14 , Author/Source: NSW Health Department
This circular of NSW Health is designed to provide guidelines to departmental officers on the selection and recruitment of consumer and community representatives to departmental committees. Could be adapted for use in other health services.
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H
Health Canada policy toolkit for public involvement in decision making
Publication Date: 2000, Pages: 149 , Author/Source: Health Policy and Communication Branch, Canada
The purpose of the toolkit is to support Health Canada's mission to maintain and improve the health of Canadians by providing direction for Health Canada employees on public involvement.
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Healthy Hawkesbury: Improving accountability and responsiveness to consumers
Publication Date: 2001, Pages: 46 , Author/Source: Sneddon, Alison
Reports a project which aimed to enable consumers to participate in defining, evaluating and reporting on the quality of health service provision by the Hawkesbury District Health Service.The project was funded by the Department of Aged Care as part of a Consumer and Provider Partnerships in Health Project (CAPPs) which was designed to further develop the evidence base underpinning effective consumer participation.
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I
Illawarrra consumer confidence mechanisms and model of consumer participation
Publication Date: 2001, Pages: 7 , Author/Source: Legge, Karen
Final report of the Illawarra Consumer and Provider Partnerships Project, a partnership between Illawarra Area Health Service and the Illawarra Consumer Health Council. The project aimed to develop consumer confidence mechanisms within the health service.The project was funded by the Department of Aged Care as part of a Consumer and Provider Partnerships in Health Project (CAPPs) which was designed to further develop the evidence base underpinning effective consumer participation.
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Improving consumer participation in the health system in Central Australia
Publication Date: 2001, Pages: 21 , Author/Source: Central Australian Division of Primary Health Care Consumer Reference Group
This report outlines the process of the establishment of a Consumer Reference Group, how it was established, and the broader role it adopted as a consumer advocate than its previous one within the Central Australian Division of General Practice. The project was funded by the Department of Aged Care as part of a Consumer and Provider Partnerships in Health Project (CAPPs) which was designed to further develop the evidence base underpinning effective consumer participation.
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Improving health services through consumer participation conference [2001,16 May : Sydney] : conference proceedings (CFC Publication)
Publication Date: 2001, Pages: 120 ,
Papers from a conference of policy makers, service providers, administrators and consumers discussing the quality of the health services, education and training and the use of consumer participation resources, tools and information.
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Improving health services through consumer participation: a resource guide
Publication Date: 2000, Pages: 148 , Author/Source: The Department of Health, Flinders University and the South Australian Community Health Research Unit
This guide is the complete resource and includes Sections 1 to 7 plus Appendices and is in zip file format. Each of the sections are also available separately in pdf format (see separate entries in the Publications section of this website).
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Improving health services through consumer participation: a resource guide for organisations - Appendices
Publication Date: June, 2000, Pages: 11 , Author/Source: Department of Public Health, Flinders University and the South Australian Community Health Research Unit
Contains the Appendices section of the above resource.
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Improving health services through consumer participation: a resource guide for organisations - Section 1
Publication Date: June, 2000, Pages: 148 , Author/Source: Department of Public Health, Flinders University and South Australian Community Health Research Unit
Section 1 of a guide for health organisations wanting to increase consumer participation in the planning, management and evaluation of their organisations.
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Improving health services through consumer participation: a resource guide for organisations - Section 2
Publication Date: June, 2000, Pages: 10 , Author/Source: Department of Public Health, Flinders University
Section 2 of a guide for health organisations wanting to increase consumer participation in the planning and management and evaluation of their organisations.
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Improving health services through consumer participation: a resource guide for organisations - Section 3
Publication Date: June, 2000, Pages: 2 , Author/Source: Department of Public Health, Flinders University and the South Australian Community Health Research Unit
Section 3 only of the above resource.
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Improving health services through consumer participation: a resource guide for organisations - Section 4
Publication Date: June, 2000, Pages: 9 , Author/Source: Department of Public Health, Flinders University and the South Australian Community Health Research Unit
Contains Section 4 of the resource Improving health services: A guide for organisations.
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Improving health services through consumer participation: a resource guide for organisations - Section 5
Publication Date: June, 2000, Pages: 4 , Author/Source: Department of Public Health, Flinders University and South Australian Community Health Research Unit
Contains Section 5 only of Improving health services for consumer participation: a resource guide for organisations.
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Improving health services through consumer participation: a resource guide for organisations - Section 6
Publication Date: June, 2000, Pages: 17 , Author/Source: Department of Public Health, Flinders University and South Australian Community Health Research Unit
Contains Section 6 of the resource Improving health services through consumer participation: a guide for organisations.
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Improving health services through consumer participation: a resource guide for organisations - Section 7
Publication Date: June, 2000, Pages: 4 , Author/Source: Department of Public Health, Flinders University and South Australian Community Health Research Unit
Contains Section 7 only of the resource with the above title.
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Information series: an introduction to participation in health
Publication Date: 2004, Pages: 4 , Author/Source: National Resource Centre for Consumer Participation in Health
Consumer participation is increasingly being linked with improvements in the quality of health care and improved health outcomes, and as a result is being encouraged by Commonwealth, State and Territory governments.
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Information series: consumer participation on committees
Publication Date: 2004, Pages: 4 , Author/Source: National Resource Centre for Consumer Participation in Health
Consumers and carers of health services and representatives from consumer organisations are often asked by service providers to join committees and groups to provide information, advice, feedback and direction. The types